My Brain Surgery Story | Pituitary Tumor Removal

I just came across your video the day before I visit my neurologist after my unexpected surgery to remove my tumor. I had no idea I had a tumor until my sight was affected. Your story gives me a sense of calm about my next steps. Thank you for sharing.

Thank you for sharing your experience. A lot of fear comes from the unknown... I'm still scared but a step closer to feeling more confident.

So great to hear how God helped you through surgery and all the grace He's pouring out in your life! Keep proclaiming His goodness! 🎉❤

I feel like I most likely have the tumor. I’m learning now it’s pretty common. I’m only 25 but I look completely different than what I’ve looked like even 4 years ago. It’s scary and confidence is non existent. Thank you for sharing your story

Im going through this right now and my surgery is coming up fast so I got all the feels. I’ve been looking for some comfort can’t seem to find it. Thank you for sharing your journey it has helped put some ease.

Only the best for you gabbi ❤!❤!❤!❤!❤!❤!❤

Stay awesome gabby!

So glad to see how far you have come! I love your openness and willingness to share this. How has this affected the eating disorder if at all.

Hey Gabbi, my name is Dave and my wife, whose thirty six, was recently diagnosed with a prolactinoma over one centimeter. She is currently on Cabergoline and we are hoping and praying for a good outcome. I just wanted to say thank you for sharing your journey and I'm so glad you're doing well.

Hi Gabbi!!! Glory to God in the Highest!!! You are headed!!! I am going for surgery too. Would i be able to talk to you?❤

Just got the news that there is something on my pituitary gland, and I am at the very first starting point. (Don't know what the future tests will show, but this helps me prepare for surgery, if that is needed). So..I am looking forward to watching this video to see how everything went for you. (this video is a real gift & you are very easy to listen to, and really explain the things well from a patient's view). Thank you for taking the time to do this video, and share what you learned. Wishing you all the best & I really like your little hair growth nubbies.(where they shaved your head for the CT)..Those are the things, that if you see them as cute/interesting..then it makes the journey a little more fun:)

Going thru this battle thanks for sharing 😢 I see surgeon next week

merry christmas 😭😭 thanks for the heart on my comment❣😭

I remember so well the day before surgery when i was directed to a MRT Scan at the evening, they rolled me in a wheelchair and a woman too had a MRT scan and we both were driven to the room with the scan machine , we spoke only very little and i was rly in a tense state, a feeling weird to explain... + i could actually sleep for 2-3 hours, more likely about 2 hours + in the morning i washed myself intentendly with a cold shower to make myself as fit as possible before the intervention + i rly had to change my planned surgery date to this one i am describing right now - i was already waiting for my surgery for one night in the Hospital but in the morning they decided not to operate because one of my blood "values" was not as it should be and it was critical for this kind of Operation, later on it turned out to be a genetical thing that is super rare in General 1:350.000 or so but in a way that it is absolutely healthy, literally, it was just that rare (in medical terms that numbers are not so high at all ...but still - also my kind of cyst has a rarity of 1 in 500.000 😂😂 literally only about 20 people in my country who have the same kind - still a cyst in the area i got it is much more common 1-1000 or 10000 (i still have the cyst but its produced liquid is now drained out pretty much all of it i assume/pressume...) i live in austria - lower austria and the surgery was in the main Hospital in Vienna (AKH neurology Departement) i am 22 when i had it , in February is my birthday, now i am 23 ((((((((((((((:

What lead them to removing it I still have mine had it for two years so many problems w it too and still no talk of surgery even though I meet w a neuro surgeon

I just had surgery April 8th ,came home on the 12th it was pretty scary I'm recovering Thank you for sharing 😊

I also have had the same experience with my taste.

I had my surgery April 1st 2024. My worst was what I went through with pulling out the sinus packing. I had headaches, swelling and it took three visits since it got crusty, bloody and more swelling. What kind of packing did they do for you since we do have drainage and the area needs protected? I had to learn and use NeilMed to continually keep it cleaned out and have to do it for the three months even though the 24th, they pulled the rest of it out . They pulled the packing out in increments so-as not to swell it up in there to much so it would not cause scaring or worse yet effect the area of the surgery which could cause blindness and even death. They said to get to emergency immediately if I taste metal or fluid coming out continuously as well as blood. It could be infection or swelling which can somehow cause spinal fluid to leak. That was terrifying.They said I could possibly lose my smelling permanently too which I was not told. I slightly lost taste but my smell is about a third back. I use Tea Tree oil under my nose to make sure no infection starts. As of three weeks in I am barely smelling it. I didn’t take the oxycodone but like you - Tylenol. No nausea thankfully or throat pain. It surely was not easy but being at an University hospital in Cleveland, OH, I can say the young students there kept my mind off of much of it. They were a delight. I had to stay 4 days. (Have an incurable blood clotting issue) Still staying with my family for another day or two because of overall weakness from the recent packing pull. I’m older too, so recoup a little slower but so glad it’s over. Hardest part? The after surgery recoup and although you have to be careful a few restrictions, it’s doable. The surgery was a breeze and they kept me in ICU the whole time. I felt spoiled rotten and their menu rocked. I could eat with no restrictions thankfully. You literally get your life back and back to a balance. I too, am almost there. Congratulations on your own recent recovery. 😊

Thank you for sharing your story! I would like to know, if you don’t mind sharing, how big was your tumor, how long did you go before they determined they would operate on it, and where do you have your treatment/surgery done? This is inspiring for many of us that are in limbo with our tumor diagnosis as we wait for the next step to happen. Also, what were some of your signs, health changes prior to treatment and the discovery of the tumor?

Hey Gabbi I’m going in for the surgery next week 15th pre and then surgery on the 16th. I’m feeling very emotional and extremely lonely. I’m so scared that I won’t come back from this. I have a lot of forgiveness and healing still to come and I’m afraid that I won’t be able to accomplish it if the surgery does not go well. Eating and listening to you has made me process the up coming operation more and I’m feeling slightly better. I want to try to stay calm and relaxed for me and my family. Any tips on things that I can do before my surgery in order for me to relax. Thank you Libby ( London, England)