Uncombable Hair Syndrome and Other Rare Genetic Conditions

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Publicado 2023-01-16
These are rare medical conditions. In 2017, Jackson, Hunter and Caden Howard were born with a rare genetic disorder called craniosynostosis, which isn't unusual for newborns, but it’s very uncommon in triplets. In 2021, 14-month-old Locklan Sample was born with a rare genetic condition called uncombable hair syndrome. In 2018, Mui Thomas shared her story about living with harlequin ichthyosis. Inside Edition Digital’s Andrea Swindall has more.

Todos los comentarios (21)
  • @Nyokicat99
    The last segment made me cry, that mom saying if her baby wants to hike she would carry her just so she could have that experience. That is so wonderful and sweet.
  • @ellaknox4544
    I was born with something called mirror movements disorder. Which means my hands involuntarily do the same thing. It's less than one in a million and I'd love to meet someone else who has it one day
  • @BK-mo5xh
    Omg, those triplets really cute. I can’t stop smiling.
  • @LiarNobody
    If the first dude ever becomes a superhero, I'm 100% volunteering as his bizzaro version.
  • @Bettinasisrg
    And all my "big" issues suddenly became a lot smaller! I love brave people they're the true celebrities.
  • @bing4783
    “she can ill help her”. best five words i’ve ever heard.
  • @kayla7562
    Omg I was going to say something about someone else but that mom at the end just made me feel emotional. So glad both of those little girls have such loving parents that will give them the best life possible.
  • @gamebreadanimal
    That mother saying if her daughter wants to ski, she will help her. Or if she wants to hike. I’ll pack her. Where did the worlds mothers like this go. I’m a grown man and this brought a tear to my eye. Prayers for these people and there conditions 🙏🏼
  • @melissadwiggins
    I was born with a form of icthyosis too; lamellar icthyosis to be specific. You can't even really tell I have it anymore as I have the mildest case they'd ever seen when I was born.
  • @rescue9810
    1:40 y’all seen that one triplet hanging there 😂 post operation…. They’re so adorable ❤ each of them looked so different from the othe
  • @ineedauhmmmuhu
    Damn, running from Los Angeles to San Francisco feels like running from cambodia to Thailand, But thats crazy, I can’t even make it to a mile, Further than one mile, Nice one!!
  • @vadim9342
    The runner is an absolute badass :)
  • @ballistic2527
    I hope they all lead long, happy and fulfilling lives.
  • My heart goes out to these people and for their loving families who give them support and encouragement and teaching their to be independent.The young lady with the skin disorder she has such a beautiful heart and spirit
  • The mom at the end was so sweet If she wants top Go hiking and she cant she can i Just carry her... I almost was moved tob tears... I have a Chronicle desease too and my Mum helps me a Lot witch Things i cant do im 30 and she is still with me at every important doctors appointment and Sometimes at normal doctors appointment too
  • @aleffush
    I pray the best for these people and applaud their strength! Inspiring!
  • @kyodizzy
    There's so many unexplainable conditions out there... I'm suffering from a neurological condition where I feel like I'm constantly rocking on a boat 24/7 every second... It's depressing and early on thought about ending life... Wish there was a cure