Teen Battling Sanfilippo Syndrome, aka ‘Childhood Alzheimer's’

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Published 2023-11-16
Sixteen-year-old Logan Pacl from Washington is living with Sanfilippo syndrome. This rare neurodegenerative disorder, caused by a gene defect, affects the brain and spinal cord. Children lose skills, suffer seizures and movement disorders and experience pain, according to the Cure Sanfilippo Foundation. The disease, also referred to as “childhood Alzheimer’s” or “childhood dementia,” is terminal. Noelle Pacl, Logan’s mother, shared his story with Inside Edition Digital’s Andrea Swindall.

All Comments (21)
  • @Vinsternator40
    The fact she goes as far as to acknowledge that her other kid's lives shouldn't revolve around their brothers' disability just goes to show how truly amazing and empathetic she is
  • @kingayy9267
    Logan's lucky to have such a great mother. You can tell she really cares about her son's wellbeing. Their family is lucky to have him, too. He seems like a happy little guy.
  • @bodhiswayze1892
    What a cruel disease, the fact that Logan has a twin must’ve made his condition so much more obvious to his poor family…😢❤
  • My beautiful niece had this disease, we lost her 2 days before her 17th birthday,. That was 31 years ago & we still miss & love her we always will.
  • @MisterAviation
    One of my classmates and his brother had this. After graduating high school and learning the fact that Sanfilippo syndrome is terminal. I looked him up as I know that there is a website about him and his brother, and learned he had passed away. I was really sad learning about one of my classmates passing away. RIP Ryan Victor Kapes 2004-2021
  • @alexpalette
    I am in awe of this mother, what a human being.
  • @gabbyishere04
    I’ve been following Logan’s mother on tiktok for quite a while now. She’s such a great mother, such an amazing family overall. I really do wish the best for Logan, and I hope that one day there will be a cure for sanfilippo syndrome.
  • @JHarrisJessop
    Noelle turned a negative into a positive. She is now able to help tons of other families going through the same thing. She’s a blessing to those online and Logan
  • @yas-per
    The fact his mother is not only empathetic towards her other kids’ needs, but also Logan’s right to privacy is amazing. We need more people like her.
  • @kdalessandro9895
    He has the best mother he could possibly have. I wish them all the very best.
  • @Lexielouwho
    Mad respect to this mama for recognizing filming her son in his most vulnerable moments and sharing them isn't right. Too many family youtubers disregard their childrens privacy. So 👏👏👏👏 to this mama. I pray your son has many years to come.
  • @georgeann3714
    Logan was given to the right parents. His mom is an angel. This really breaks my heart. He is just precious. Logan is very loved. That's definitely one thing he has by the millions.
  • @katieann270
    Having a child with a disability teaches you enormous patience and strength. I would do no less if it were my son. Keep staying awesome mom!
  • this kid is lucky to have a good family. I've seen kids in other countries with disabilities just become marginalized by society.
  • @poohbear4515
    She’s truly a blessing for that brave young man. What a heart touching story. ❤️
  • @DeadSezSo
    I just can't imagine having a twin brother with this condition, growing older and maturing while your twin brother seemingly stays younger than you. I'm sure he loves his brother and tries to be the best big brother he can be to the brother that should be walking in lock step through life with him. This family is in my thoughts and I can only hope that they can enjoy whatever time they have left with him and that they can get through this as a family
  • What a great mum she has no self pity, she is loving and driven. Not only do I admire her caring for a child with disabilities she shares her knowledge, runs the home while her husband is serving his country and is bringing up 2 other wonderful kids. This lady is amazing, I wish her and her family all the very best😊❤️