My Chronic Illness Has Inspired Me To Help People Beat Their Loneliness

If people leave you because of your health problems then they're not real friends. It hurts but you're better off without them 💔

This hit home for me, am 27 had no friends last 5 years it sucks big time. Good for jameisha for talking about this

I just found this post today! I also have Systemic Lupus as well as quite a number of unconnected illnesses. I am sooo lonely I just feel live is not worth living. I remember when we were living at our home in the U.S.A., I used to attend my neurologist every 2 weeks. He used to schedule my appointments last thing so that we could cover all the ground we needed to. One day as we walked to the parking lot he warned me that, with so many chronic illnesses, I might one day just be left alone with just my husband for company (& he hates to talk.........). I reassured him that I was sure with my large extended family that I'd never be lonely. His reply was that, if doctors aren't taught how to deal with patients who are chronically ill, how did I expect "laymen" to stick around, never mind understand. His words were prophetic. My dog is now my official best friend. I hate having to take steroids for my S.L.E. I know they've kept me alive but the "chipmunk cheeks" aren't so attractive :-). I'm back in the U.K. & ain't our health care system wonderful??? Wish you were nearer, we could start our own little support group. I hope today is a good one for you. Thanks for the post!

I have a chronic illness and I only get to leave my apartment about 4 hours a week with a worker. I live alone in disability housing and I only have casual online friends now and I rarely see my family. I'm 24. It's been like this for a few years. There is little to nothing in means of local support. I've given up. I only talk to 5 people outside the internet and 3 of them are medical professionals. This is reality for more people than you think.

So sick of how ppl think it's only old ppl who get lonely - where's the Silver line equivalent for everyone else??

Loneliness is so so common and I have definitely been affected by it a lot. I just love this girl and the way she spoke up on it.

Damn may god give you strength girl I pray you get better 🙏🏾🤲🏾

Yeah, I don't drink so people assumed I wouldn't want to go out, as if you have to drink if you go to a pub, so was never invited. After 5-years of it (18-23) I gave up hope, now I'm 35 and on my own. Over time people just dissappear.

I think it is all about family. Assuming that family is not at war with itself. I ran a bed and breakfast with my mum for a while. It was like having a series of families. We never felt lonely with people coming and going. It was a perfect mixture of long and short term guests. Mum died and the heart of the house along with it. And the great guests never returned. I believe "no family - no point." Strange how there can be so much loneliness with 7.7 billion people on the planet. We're designed as social beings aren't we?

Omg, I have this and take hydroxocloquine as well.. my employees never understand my illness. Thankyou so so so much posting this..

I have ME/CFS and I love that quote

it's so refreshing to be able to relate so much to someone finally talking about the connection between mental and physical health, both of which certainly go hand in hand for me. she's such a beautiful girl i literally wish her the world

She's amazing...even thru her own adversities she's still trying to help others like her & help others understand. That's very rare!!! With that being said how could anyone not want to be friends with such a great person!!!!

I have fibromyalgia i totally understand its so lonely

Being lonely with chronic pain or illness is extremely difficult. Many people just don't get it. Love someone today because you never know how one person could be suffering. They could be alone and you might be the only light in their world. Especially when they're dealing with physical health problems. Don't leave the sick alone. There's not enough talk about this and I've chosen to do something about it to help others and spread awareness. Nobody should have to suffer in the dark without a support system when their body is attacking them and they wish to escape the horrible agony their conditions cause them. You can have friends but many of them are gonna be non present in your world because they're stuck in their own. With illness, i can't have all the friends i have do that even though i do get why they do, because i can't go through this alone. I need people who will reach out and offer help because sometimes I'm not even able to talk or get out of bed. I try my best but with limitations the fight is much harder. This isn't as simple as when people say, learn to stand on your own, well if your body won't let you you need help. I hope everyone out there who is medically ill has help and assistance on the regular if they need it.

I understand how you feel sometimes I do feel lonely too and people don't understand.People always say you shouldn't feel lonely because of the way you look how the way I look make me feel don't make me feel lonely

I have fibromyalgia and chronic fatigue syndrome. I'm in bed all the time. For the 4 years I've went down hill. With my illness. I use to get out of the house at least 1 or 2 time's a week. Go to the club have drinks. Socialize. I can't ANYMORE.. My BODY just in pain

So proud of you Jam ❤️

She's so pretty ❤

My husband has Crohn's and Osteoporosis.. he gets lonely very often.. I do accept that I can't completely understand what he goes through. It can be hard for us as a couple because I can't stay beside him all the time and I have to work. It hurts me that I can't completely erase his loneliness.. I do feel as a failed wife..