The Darkest Time of My Life | My Hashimoto's Story PART 1

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Published 2017-01-20
My Hashimoto's / Hypothyroid Story: The Diagnosis.
It took over 5 years to finally get a doctor to listen. Depression was my number one symptom.

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All Comments (21)
  • I was diagnosed with Hashimoto's less than a month ago. I am 15. I was feeling very depressed for the past year and decided to do some research on what causes depression. (I also experienced fatigue, a bit of weight gain, heavy menstrual flow, painful periods, muscle pain, my sleeping patterns were weird and stuff.) One of the most common causes of depression is thyroid problems, so I decided to get my thyroid checked out. I was doing a lot of negotiating, but I finally convinced my mom to let me get a blood test, and ultrasound and talk to a doctor about this and, boom, I have Hashimoto's. I was really happy. Partially because I want to become a doctor when I'm older and getting this diagnosis because of my own concern and because of my own research made me feel very proud, and also because now I know that my mental breakdowns, suicidal thoughts, endless crying, not being able to go through the day without having to take a few hour nap weren't just "my fault", but an actual condition. Also, because I'm insane. Yay!
  • @sydmil0719
    I don't think people understand the effects of Hashimoto's on the brain and emotions. I've always tried to be a sweet, kind person, but when my levels are off, I can get mean. I also totally understand the suicidal thoughts. When you are depressed or anxious over a situation, that situation may change. But when you are pretty content with your life and think about suicide, that's a problem. I have had anxiety so bad that I felt like something was trying to kill me. I've had depression so bad that I wanted to die. I didn't necessarily want to kill myself but I wanted to go to sleep and not wake up. You just lose all motivation to continue living. Also, I have to say I love the Boston!
  • @999irinak
    I watched and cried; I completely understand and have walked in your shoes. I am glad we are both much better, even though it's an everyday struggle. Much love :)
  • @Eq89
    Wow i cant believe we have so much in common. I too have Hashimotos. A nutritionist actually diagnosed me back in 2008. I was weak, felt like i was 90 when really i was 35. My joint ached so bad. I felt like i had the flu 24/7. Along with depression, anxiety this disease is a silent for sure disease. It definitely doesn't have the recognition that it should. If i could pinpoint when my symptoms started it would have to be right after 3 major events in my like that happened back to back. Its nice to watch videos of other people tell their story. We are not alone ..
  • I've been I'll since 2008, and have experienced many of the same things you spoke of (depression, feeling alienated, feeling worthless). I'm glad you finally got a diagnosis. Much love 💞💜💕
  • @Lifeonplants
    hugs Invisible illness....the perfect description. I am glad you have found a great Dr. That's one of the reasons why I don't want to leave this area. I love my Dr's! I was supposed to release my lupus story on my channel a while ago...I should get on that!
  • @shauntless3192
    I got diagnosed when I was 13 and now I have just turned 23, boy has it been a tough journey! Watching this I realise I'm not a bad person for being so down and angry! Like recently I have just been in the deep end and having anger outbursts out of nowhere, I've gained so much weight and can't seem to lose it plus I always thought I just had severe depression and anxiety but now I can see just how much Hashimoto's comes into play with that too. It's so hard because people just don't understand and then there is also not enough info out there about our disease. So, thanks heaps for sharing your experience and I hope you are doing better now xx
  • @SanchoGracie
    I've never related to a story so much in my life. The exhausting & fatigue is literally killing me. I get blood results Friday. I'm terrified that I will get the same "subclinical" BS response.. or worse...."normal". Subscribe
  • @catriona5268
    Thankyou so much for making this. I'm feeling the exact same way, and have done for the last half a year. Hashimoto's runs in my family, but I didn't know until recently. Needless to say, I've got an appt. with my doctor in two weeks. Hopefully I can get a confirmation. Anyhow, until lately I was thinking I was just crazy...I feel bad that you were so ill, but it is nice to know I'm not alone.
  • @abbieamavi
    so helpful. I'm overjoyed that others are finding the diagnosis and solution that they need! I too went vegan, rested up, and I also started weight training. My energy and strength is the best it's ever been, and I'm so excited for my future because for once I feel normal again!
  • @crystal5924
    I have had very, very similar experiences. The only difference is I was diagnosed when I was about 12 because they noticed a goiter in my neck. I started taking thyroid medication then and the dr's always kept my TSH in the "normal" range. When I was 16 I was graduating high school and had basically starved myself for months to lose weight which seemed to make the endocrinologist think I was somehow getting better and he wanted to see what would happen if he took me off synthroid cold turkey. Well within about 3-4 months i had gained 50 pounds lost my job dropped out of all my college courses and was sleeping like 20 hours a day, I could barely walk up a flight of stairs. My TSH was over 100! So I went to another dr who immediately started me back on a high dosage of synthroid. That was 14 years ago and I cannot seem to lose weight no matter what I do unless I use weight loss drugs like phentermine. However my TSH is never stable but i have always kept it with in 0.2-9.0 (usually it's around 3). About a month ago I started feeling really weird, so tired, depressed, hopeless and I was packing on the pounds for absolutely no reason. There was a point where like you I seriously wanted to be dead, I was just laying in bed wishing for death. I had never been in such a dark place in my life. Then the dr. called with my TSH results and told me they were up to 23.0! It all finally made sense to me I immediately double my dosage for a few days and felt better almost immediately. I don't know what caused this and I gained 15 pounds in one month. It's so hard to manage, I feel like I can't manage my job or life and that I'll never be able to deal with this. I have been vegan for four years but have never been as fat as I am right now :(. Thanks for sharing your story, it gives me hope that you are doing well and I'm not the only one out there who deals with this.
  • @Shayne_T
    I have Hashimotos and hypo as well, diagnosed after pregnancy. Many people think I look normal, but don't understand that I feel the symptoms. I feel for You! I have changed my diet - gaps for now.. and low fodmap. Healing the gut & cleansing helps with healing. What medication are you on? Do they measure your t4, t3, reverse t3, when they check TSH? I Hope so :) This is a horrible disease.. I could stay in bed for days... mood swings.. anxiety.. bloating.. fatigue.. it's real and I can relate. I hope you feel great!
  • New subbie! Well told story, almost my thyroid story verbatim! I had my thyroid out in 2012, I was diagnosed with Hashimotos a few yrs before that, I am still struggling but I’m hanging in there. Thanks for sharing your story so others know that they are not alone! 💜🌸👍
  • @Leesha_B88
    wow...i see so much of myself in you 😢 so sorry to hear about your story but glad you got diagnosed. I think it's time I see a doctor about this with myself. thank you for making this video. 💛
  • @sophietoal1112
    I’ve just been recently diagnosed with Hashimotos and I’m only 20. Pretty scary to be diagnosed so young. Just been for ultra sound scan on my thyroid and doctors have called me in again to go see them.
  • I know exactly what you are going through. I have suffered with these horrible symptoms since 2014, and in December of 2017 on my 9th doctor he actually done his job and just didn't focus on TSH , and tested my antibodies and discovered that I indeed had Hashimotos. He started me on Synthyroid, which I was somewhat discouraged by this because I had been on many different levels of Synthyroid and I hated it because all it ever did was exacerbate my symptoms or through me into Hyper. So I was started on the lowest dosage, took it as prescribed and NO change, so he tried giving me Predisone to try and kill whatever was attacking my thyroid and that didn't work, plus he started me on Armour, which I have taken before as well. So currently I am taking 30 mcg of Armour and so far No change in my symptoms. It's so discouraging living with a disease that has such detrimental symptoms. I'm currently in so much pain at the moment, my joints and muscles ache, I have lost all of my strength, I'm having to prop my feet up because of the swelling in my feet and legs is so painful. I have lost so much hair it's ridiculous. I completely understand when you said you felt like a zombie, I feel the exact same, plus I feel like a 95yr old and I'm only 36. It's frustrating not having anyone that understands what you are going through to talk to, because I might not look sick but people can't seem to understand what it feels like when your body is destroying itself. Is there hope for me? Because I'm losing faith that I will return to the vibrant, energetic, motivated, happy individual that I was. I just don't understand how some people who suffer from our disease just simply takes their Synthyroid and they feel fine again and get to enjoy life, what makes my case so difficult? Why are my symptoms so unbearable everyday I open my eyes? When it comes to your lab work are your t3&t4 levels normal? Because I follow my blood work carefully and mine runs like this- TSH bounces from high to low, my vitamin D is low, B12 low, antibodies high, but t3&t4 are always normal. When I was given a high dose of Synthyroid it would throw me into Hyperthyroid. Have you had any of these problems? And I'm sorry this is so long , I just have no one that gets what I'm going through and I have no one to talk to about. I hope you see this. Thanks for sharing your story.
  • @nkimberly33
    Wow, I'm so sorry that you waited so long for a diagnosis. My mom has hashimotos so she had me tested at age 11 bc my neck was swollen. That was in 1990, I've been on thyroid medication for 27 years now. Hashimotos has caused so many problems for me, even with treatment. As an older teen I was noncompliant with my medication and I became quite ill. I've had all sorts of problems with my liver, etc. It's too much to mention here. Hope you are feeling better now. It's a lifelong battle.
  • @Ydce1891
    Thank you for sharing your story. I have Addison's Disease and Hashimotos. I've definitely experience the brain fog, weight gain and incredible exhaustion. I'm happy that you're able to find proper care. It took a long time to be diagnosed for me as well and Addison's disease can lead to death without treatment so I understand feeling like complete and utter crap lol. I really love your videos they are so down to earth and up beat, aside from today's lol. They really put a smile on my face. ❤️
  • Males can have it too. I reckon that because it is so rare in males i was not properly checked.. until i was 52. Looking back i think my hashimotos since adolescence.
  • This is a hard thing to open up and talk about! I recently spoke on this on my channel :) thanks for raising awareness! I’m sorry the struggle is so real!