Hidden Disabilities and Invisible illnesses

Dr. Gupta I have not met a doctor with your amount of patience and knowledge! You are a true gift to humanity ♥️

You are spot on with loss of identity. Its a shame there's not more Dr's like you. Your so sincere. You diagnosed my son earlier this year after myself and daughter also have Pots. Wish I could come to this event. Best of luck with it all

I wish you were in the States Dr. Gupta. Your patients are so fortunate to have you!

Reading Reddit MDs talk about patients with POTS is horrifying. After you get the dx it’s amazing that other drs assume the patient is mental. Not just pots but any disease that isn’t well understood by wider medical community. I wish Drs would believe their patients. There certainly are those with mental disorders that make things up but that has to be the smallest group. Most people want to feel strong and healthy! They just need to be believed as a starting point. Thanks for caring Doc!

I have a mild traumatic brain injury. There is nothing mild about it, except that I appear normal to other people and so I 100% relate to the daughter and to people of the likes. I was forced to isolate because I couldn’t deal with any type of stimulation, but that only made things worse emotionally after already losing my identity and everything that I had prior to the injury. My life has done 180° turn. Five years later, I am about 50% better, which is to say that I’m still not at all where I’d like to be emotionally, in terms of capability, financially, etc. and so I really applies what you’re doing for those with invisible disabilities. It truly is a nightmare, and because most cannot relate, that’ll make you feel more alone. Best to you and your cause.

I had this before the covid vaccine with that curse numerous side effects but it's worse now. Always nice to see a new video from this doctor as he talks about health problems that aren't talked about as often.

There are a lot of parallels among the experiences of someone with POTS and individuals with Endometriosis/PCOS. Endometriosis and PCOS are also very disabling hidden chronic illnesses. And since Endo affects 1 in 10 women, so many women with POTS also struggle with Endometriosis (including myself). Having people from a variety of hidden chronic illness communities is a wonderful idea! We all need support & understand each other's experiences of feeling dismissed by the medical system or feeling isolated due to our limitations. I love this video ❤️

I wish they'd do a study to find out how many had undiagnosed autoimmune diseases that masked dysautonomia. I've met plenty of pots patients later diagnosed with ms, mg etc.

Wishing every success to this wonderful event and this excellent new Charity. For sure, not enough is known by the public, GPs and Hospital medics about PoTS (Dysautonomia) and how it utterly destroys lives. All my life I have endured a myriad of illnesses, endless pain and operations. People have no idea how EVERYTHING in the body is affected and they throw their arms up and say “But, you can’t possibly have ALL those things wrong with you at once!”. I am now old and my condition has deteriorated. I’m bedridden with PoTS, EDS III, chronic Migraine and Sjogren’s Syndrome so, unfortunately, I won’t be able to attend the wonderful proposed event in Hull in October, but I wish you all a really excellent and successful evening - and success with the Charity in the future. I have signed the Saline Petition. Best wishes to you both and thank you, so much, Dr. Gupta, for taking patients with PoTS seriously and for making such a difference. Christine.

I have mental illness, autism and POTS. So 3 hidden disabilities. If you have POTS you are more likely to be autistic and have Ehlers Danlos.

I'm at the moment awaiting a cardiology apt for my son after 3 years of ongoing symptoms which was diagnosed as FND (Functional Neurological Disorder) 2 years ago over a telephone triage by a consultant...Two years on after struggling on our own for last 3 years, his Accupunturist realised his pulse was rising pretty high each time he stood up and bless her she wrote to our doctor for further tests...This charity sounds wonderful as I've been looking around for some support as my son 22, with long term aspirations has for the last 8/9 months shut himself away from life...This is what's killing me seeing my son not being able to get on with his life nor really get any help...How would know where to look for the information for this support group you are setting up?

I have three invisible illnesses… EDS, IST, and chronic intractable daily migraine. It’s extremely difficult to get the medical community to understand the severity of the disability because I look pretty much okay when I’m not using my rollator or cane.

Doctor Gupta could you please do a video on anxiety and panic disorder ptsd and heart rate , palpitations, fast heart rates , blood pressure spikes there are so many of us struggling with these symptoms and conditions and no one gets the proper answers the chest pains, agoraphobia, sinus tachycardia or possible IST or caused by anxiety natural help , anything we could use your services please 🙏

Hi doc I am not a cardiac patient but I love watching you and listening to all of your knowledge

Great topic, thanks for all this information ❤

Thank you for this and all your videos Dr Gupta. Raising awareness of POTS and other invisible illness is so important You are a wonderful doctor and your work is most appreciated. Victoria Lister (York Cardiology POTS patient)

This is going to be an amazing advent, i wish the charity great success for this very important subject ❤

In hospital at the moment. I feel that the nurses don't see my condition and see me as taken up a bed in the CCU ward because I seem fairly healthy. The Doctor is keeping me in but I'm not sure if it's because I've been caught in a mix up of respiratory and cardiology. I want to be independent but I need some help, also, I want to feel/be in control too. I have heart failure. I feel like I am a problem to everyone. I'm 53 years living on my own on government benefits.

I wish all drs were as helpful and understanding as yourself. You can see that you really want to make a difference in patients lives. I have an invisable condition. I have experienced discrimination. Because 'i look fine' doesnt mean i feel well on the inside

Thank you so much, Dr. Gupta! 🥰