My Hair Loss Story - Scarring Alopecia

Your story touched my heart. I've had alopecia since I was 18 (I'm 64 now.) on top of that I got bc two years ago. So far so good. I've worn wigs for 30 years! The first 20 years I only wore human hair wigs. Expensive and I still had to style them. The last 10 years I've discovered synthetic wigs and I would NEVER go back to the hassle and expense of human hair again. Once you accept the alopecia, start having fun with wigs! Like you said, you can be ready in two minutes! When life hands you lemons, make lemonade❤️

Thank you for sharing your inspirational attitude. I am in my first month of treatment for LPP and have lost 50% of my hair in the last 10 months. My hair has always been my security blanket, and what made me feel feminine. I feel incredibly alone and vain.

I've watched your video several times as I'm struggling with my scaring alopecia. Thank you for making this video. It helps to listen to you talk about your experience.

Thank you so much for putting yourself out there and sharing your story. I have a similar story, in that my hair loss from scarring alopecia didn't begin until I was in my 40's. I have been wearing wigs full time for almost a year, though I struggle still with feeling like everyone can tell I'm wearing a wig when they look at me. It was good to hear you say that actually no one really cares whether you have a wig on or not. It really helps to hear that; and, by the way, you look beautiful, and so does your hair. :)

Finally finding a video that I can relate so much too is so great!! I have a rare disease that is another branch of LPP and I've been searching to find a story similar to mine and your video was amazing and it was like you were in my head. I wanted to cry and I'm having a hard time finding the words I want to say but most of all I want to say thank you. 💜

I'm so happy you shared your story. I also have scarring alopecia ( frontal fibrosing alopecia). You are the first I've seen on YouTube with scarring alopecia. I just transitioned to wearing wigs, and the YouTube community has helped me, too. Thank you for helping to support the rest of us.

I also have LPP. Diagnosed about 10 years ago. Thanks for sharing your story. Lots of us ladies are going through this. Lots of trial and error...lol Blessings to you. 😊

I'm 57 and, after years of great hair, I am preparing to cut off my remaining hair and start wearing wigs due to scarring Alopecia. This video was touching and expresses my own feelings about hair loss. Thank you!

I have had alopecia since I was 28. I totally lost all my hair after my daughters birth. I am 70 years old. I was so embarrassed for so many years so self conscious . wore some of the most unflattering wig . I’m finally wearing better wigs(lace front) and I am more confident. I don’t care anymore if people know. It took me a long time to get here I have a wonderful husband great family snd friends I am beautiful even without hair.

You look very nice and natural in your wig. I too have scarring alopecia. I have frontal fibrosing alopecia and it is hard to find a topper or wig that looks natural at the hairline and at the temples.

Your tender and genuine spirit and soul shine! I adore you and I don't even know you, but I feel that I know you. Thank you for taking the time and courage to make this video. It has truly helped me. Please, keep making the videos. Take care of yourself and thank you for helping to teach others to take care of themselves!

I just want to say how inspiring and comforting I found your post. I am a couple of years into Frontal Fibrosing Alopecia and starting to worry when and where it will end. I wholeheartedly agree that there are worse things in life however, it doesn't help the way you feel about it. I, like you have always had a thick head of hair and what is happening bothers me every day. I've tried various treatments and now have scars from the steroid injections. I've just lost my best friend and honestly the hair thing shouldn't be a deal, there is so much more to be sad about but it's a hard journey and seeing your post is honestly inspirational. I love your wig, I was shocked it wasn't your own hair - looks amazing and I bet your are a fantastic friend to have around. I cried watching your video but you also feel like the sort of person I would like to sit down and have a glass of wine with. Bless you. xx

It's great to hear your story, as mine is almost identical: Lichen Planopilaris after my two sons were born (in my 40's). You are an inspiration. There's lots of alopecia stories online, but none about lichen planopilaris!! I too am finding lots of help in the YouTube community -- it is invaluable. I am still "camouflaging" my scalp, not too well anymore. Getting ready to take the plunge and get a wig, soon. You look fantastic BTW. Very sorry about your friend's passing. It puts hairloss in stark perspective compared to other battles people are fighting every day. Thank you again.

I agree with you. Hair loss isn't nice, but for me it wouldn't be the end of the world. I've always had thin hair so I wear wigs all the time. I love the flexibility that wigs give me.

You are an incredible and inspirational speaker! I'm going to be watching this video repeatedly every time I'm feeling down.

Persis Khambatta look out! She may have owned the look in Star Trek the Motion Picture, but you have her beat hands down. Hair or not you are just gorgeous and you ROCK the look! Your video was well received on my end because I have scarring alopecia due to a very rare genetic disorder called keratosis follicularis spinulosa decalvans. Not even a real name - those four Latin words just describe the hairloss pattern. Thanks for posting this video.

I'm so touched by your video. My hair loss is quite extreme and I'm battling every day to try and camouflage my loss with fibres and attachments. I've been so scared to wear wigs and prefer to hibernate from life rather than walk outside with a wig but your words have inspired me to be brave and live my life as I used to. Thank you you are beautiful and inspirational.

Maria, you are courageous, inspiring and beautiful inside and out. I'm so glad you're posting these videos....you are a natural and you will help so many people! I am so sorry for the loss of your friend. She was so lucky to have you by her side. Thank you for sharing xo

Thank you i have the same condition & months of stress & worry ive now got my first beautiful wig & looking forward to owning more & difféent looks