A day in the life of living with a Stoma | Changing my bag | Living a "normal" life

Published 2020-06-07

All Comments (21)
  • @ecrissman
    Great video. Thanks for sharing your day! I’ve had my stoma for just under a year. One of the best decisions I’ve ever made after 25 years of suffering with colitis. I’m choosing not to go forward with j-pouch surgery because my life is so much better and I don’t want to deal with the possible complications. Your channel has definitely had an impact on my decision.
  • @acer908
    I have never commented however I have been watching for the last couple of years. I went in for emergency surgery two years ago and ended up with a stoma. I thought my life was over however watching this channel helped me to become myself once again. Most stoma info is delivered by females and having a male definitely helped me to regain my confidence, especially since he is located close to the same city as me in Manchester. Definitely helped me to connect on a local basis. Keep making videos and I will always watch :) I pray that the person mentioned in the news article makes the right decision with a clear frame of mind. I spent two/three months after surgery feeling depressed as my stoma came out of nowhere however Joe/Joseph made me realise life isn't over just because of a ileostomy and that you can continue with what you enjoy doing.
  • Try using a blow dryer on low to dry the stoma area also it warms the skin to get a good seal. I use it after a shower to dry the bad as well
  • I am very grateful for you making these videos. Tomorrow I will be having surgery to remove my colon because this is my third colon cancer, and I will wake up with a permanent stoma. It has been difficult for me to be okay with this. But watching your videos have been so helpful for me to be more okay with it. Thank you again.
  • So proud of what you’re doing! Just watched it the whole way through and think you’re incredibly brave and inspirational! I’m going to share this in my endometriosis group as a lot of the girls there have the condition so badly that they also end up requiring an ileostomy and I think this will really help people.
  • @whiteblade954
    Hi Joseph, what a great inspirational video, I have had colitis for the past 10 years and mostly kept under control by medication, I'm 56y guy who loved his cycling but since I was diagnosed been unable get out there. 2 years ago my wife and I moved to adelaide Australia hoping a change of climate would improve my condition. Ever since moving here my flare got worse and I was prescribed with a biological drug infliximab however, my condition is continuing to deteriorate. Unfortunately it has come to the stage where I need surgery, I'm due to have my colon, anus and rectum removed, I chose this procedure over a j pouch. Now this has been a huge life changing decision for us and I a little worried for the future but your videos are so beneficial, thank you so much! Regards Dean
  • @mellythorne5417
    Ah this is great. I think it's helpful for people to see a normal day. I remember the first time I tucked the black bag into the top of my trousers for bag changes, never looked back especially with Ileostomy! 😅 Also really appreciated seeing your sweet nature with all these troubling times going on. Thank you!x
  • @ralfbahr6052
    Thanks a lot for the Video and the motivation, I do have CU since a couple of years. Ma biggest fear is not beeing able to do sports anymore. I‘m pretty actice with Crossfit - so if I loose this .... Seeing your video and how you master working out etc. really helps to make the right decision. Thanks so much and all the best 👍
  • @irmavincent9546
    I admire you so much. You have a healthy life with great food!!!!! The best for you!!!!!
  • Dansac's Appeal Spray is possible THE best thing invented, lol! I'm jealous of you eating beans...I could very easily eat 2 cans but daren't have any...well I do but pay the price in the night, lol. Great video!
  • @Nhxn_
    Dood ur an inspiration.
  • @ciaraclarke3535
    Omg I know it takes time to learn but you changed that bag so quick!! I’m 5 days post op and I’m so nervous about changing it
  • Good work Joe. Ted. Any advice to quench appetite. Like you said bag will get to memory of when you were before surgery. I don’t want to return to 17 stone again. And apart from chain smoking I need to think of ways to keep weight off. Cheers 🧸
  • I remove my bag before showering and rinsing clean with lukewarm water. Dries dry and puts on a new bag. I change every morning after breakfast. I have colostomy
  • @mariska369
    Hello, can you write down what products do you use when you changed your bag please? I kinda new being ostomate (1month now) and im interested with that ring before you put the bag, it cover fit to you stoma. Thanks anyway for the video
  • Do you change your bag after every shower? I just had surgery and had mine placed and I’m still trying to figure out how to shower without getting the adhesive wet.
  • @Tom-mm7qw
    Under the wafer my skins gets itchy