Pete Eveleigh's Story: The Fight Against MND
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Published 2023-03-29
Here is his story…
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“Motor Neurone Disease (MND) is a neurological condition which affects the nerves in the brain and spinal cord. In some countries it’s known as ALS. MND affects a person’s arms and legs resulting in the need of a wheelchair whilst losing the ability to do basic things like wash, feed and dress yourself. It affects your ability to swallow food and drink which leads to the need of a percutaneous endoscopic gastrostom (PEG) feeding tube, to maintain nutritional intake as swallowing becomes impossible. Your voice is compromised and people are unable to talk meaning communicating is difficult. Breathing muscles are also affected, which leaves you relying on a ventilator to breathe. All these symptoms occur whilst your mind is unaffected.” - (darbyrimmermnd.co.uk)
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INFORMATION:
MND Association: www.mndassociation.org/
Darby Rimmer Foundation: darbyrimmermnd.co.uk/
TeamEvo: www.instagram.com/teamevo_mnd
Team Stewart: www.justgiving.com/team/teamstewart254
TeamEvo GoFundMe: www.gofundme.com/f/team-evo-the-fight-against-mnd
#MND #MotorNeuroneDisease #DarbyRimmer
All Comments (21)
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the more attention that can be given to the condition to increase awareness and research funding, the better. Keep fighting! I'm glad you have a great family to keep you motivated!
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May god bless him for long long life and get relieved of the disease
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Heartbreaking to see such a fit, active young man with his life ahead of him be physically destroyed like this. This has to be the worst disease ever.
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I remember Pete from school. He’s so inspiring, but this is heartbreaking. I really hope the trial gives some improvement for him.
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His wife is amazing God bless her
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Life is so cruel what a handsome man and his lovely family a awful disease
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Keep fighting Pete, we’re willing you along your journey! All the best to you and your family my friend. AJ
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Bless your hearts, I hope they find an appropriate trial for you Pete and you can improve. I’ll keep following your progress and want to see you healthy again in the very near future. Good luck hun. 🍀
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Praying for a healing for him amen
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This family are truly inspirational. What a cruel unforgiving disease. That little boy is a credit to you both, a little darling, eloquent and so well spoken. I pray for your recovery, and hope the interventions are positive. The mind is very powerful, stay strong and together.... God Bless you all on this journey 🙏❤️🙏
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Such a beautiful family. I'd never heard of MND before, thanks for raising awareness and sharing your story.
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What a guy and a strong women next to you , I pray 🙏 for a cure x
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My friend's fit and health conscious son started to experience the signs of MND when he was cycling and found that one of his feet could not push the pedal. Who could believe that within the year he was laying in bed, paralyzed from the neck down with a tube helping him to breathe and a tube feeding him. This was a young man, who would go rock climbing, work out at the gym, swim and cycle everywhere and all before that one symptom of MND when his foot could not push the pedal. To say his death was a blessing is an understatement. i hope and pray that more money is pumped into research to help find a cure for this very cruel, brutal disease. Good Luck to Pete Eveleigh, A lovely family and a loving, strong woman by his side. Hoping things are going well for him.
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God bless u and ur family, Pete hope u get a cure in the very near future,,,,,,,,,,,,,,,,
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Brother you great you have a great family ❤
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I was given a diagnosis of MND in June 2022 by my neurologist. Here in the States, the diagnosis must be confirmed by a “higher level of care”. After months of waiting, I finally got a zoom appointment with a neurologist at a prestigious ALS Clinic at a university medical center in California. Early in the zoom appointment , the neurologist, (without an in-person exam or repeat testing), declared that I didn’t have MND. As my husband broke down in sobbing relief, I asked her how she could know that? She said it was because she’s an “expert”. When I further pressed her, she said that it was because I was able to stand from the sofa without using my hands. Everyone is thrilled except me, because my symptoms continue to worsen. I feel like I’m “twisting in the wind”, without the benefit of a diagnosis (of any kind) or hope for support or treatment. No other doctor will question the opinion of the expert.
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Terrible cruel disease. X
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I'm so utterly sorry for you and your family. This is probably one of the worst diseases to negotiate (my sister was diagnosed with it 😢😢). May God be with you all.
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I'm exactly the same. Started with muscle fasciculations around 3 months ago, now i have weakness in my left arm and right leg. Keep almost falling over and dropping everything. I'm terrified. I had two spinal surgeries last year, I'm sure it's triggered it. I'm at the consultant 15th of August. I'm 44 xxx
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So inspiring thank you for your video my husband has MND can you please tell me where you got breathing and hand equipment from… my husband is Turkish and not entitled to any benefits because of his visa but the MND association have helped us
