Learning to Live with Post-Covid ME/CFS | Covid-19 Survivor Diaries Episode 13

Survivor Diaries
Survivor Diaries
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Published 2022-12-28
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Hi! We're Morgana and Jaco. When Covid-19 started spreading where we lived in 2020, we began documenting and sharing stories of Covid-19 survivors to spread awareness about the disease. But, we decided that wasn’t enough. We wanted to show how Covid-19 has impacted people across America. So, we packed up our New York apartment and moved into a 19’ trailer. 414 days, over 40,000 miles, 4 flights, and over 70 campsites later, we have now interviewed over 190 survivors in 50 states. In our documentary film series, you’ll get to know some of them and their stories. And you’ll hear from experts who answer our questions about this virus as we drive through the heart of the outbreak across America.

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00:00 - Episode 12 recap
01:07 - Season 1 intro
02:15 - Start of episode 13
06:05 - The backstory
14:17 - Death with Dignity
17:30 - Moving to Oregon
20:40 - Cheryl and Joe end reflections
26:04 - Jaco and Morgana end reflections

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All Comments (13)
  • @CherylRuzzo
    Thank you for giving Joe and I the opportunity to share our story in this way. This is absolutely us. We appreciate everything that you have done for us and for so many other survivors.
  • @francescarrillo7080
    I live in New Braunfels, TX. I had the omicron variant 12/26/2021. I’m still trying to recover. Thank you for sharing this story. It gives me some hope. There’s some Shame about having this condition. I have found very little help. We moved here 7 years ago and had so many plans for our 7 acres, but just like the woman you interviewed, it has felt more like a prison. Thank you again. I needed to see this.
  • @kimmartindale9205
    I'm dealing with ME dysautonomia x 30 years now. I am glad you have each other!!! The majority of people lose their partners and family
  • @mpbyns2
    When you do these interviews and stories, can you clarify if these individuals were vaccinated and boosted? Thanks.
  • @chrisduncan3943
    There have now been a couple papers published that claim that most people with long covid recover within a year. You wouldn't know that by visiting the forums. It's important to maintain hope because most people will recover. Part of the hopelessness is listening to fearful people online and part of is probably just a symptom of long covid itself.
  • @MikeBush-zy6gh
    I sympathize with this young lady. I’m not in a wheel chair yet but have had my share of major problem since the vax in 2021. There has not been one Dr that takes me seriously so I just get sicker. All of these Drs that refuse to help people should have their licenses revoked. I realize that these Drs do not know what to do but do they not have the drive as a Dr to just take some time to do some research And at least try to help? I have been gaslighted and dismissed so many times that I don’t want to see another Dr! The medical field has failed the American people!!!!!!’n
  • @brobinson8614
    Interesting as a lot of people who either have or a family member has Ehlers-Danlos Syndrome. Which is common in people with ME/CFS. There must be a genetic link here
  • @4299chez1
    Can’t wait to see where you are at in another year Cheryl Ruzzo xx
  • @Star5dg
    How is she doing now? I have these conditions :(