How a cutting edge treatment sped up Matthew’s recovery - LONG COVID RECOVERY STORY
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Published 2024-07-03
After two years, twenty doctors, and visits to three different states, Matthew still hadn't seen any improvement in his health. Thankfully he discovered the Bateman Horne Clinic where he was diagnosed with Long Covid manifesting as ME/CFS and POTS. They prescribed medications to manage his symptoms and he began to improve by about 5% each month. He thought he might eventually reach remission but a massive relapse left him bedbound again.
Desperate to find a solution, Matthew traveled to the Aviv Clinic in Florida, which pioneers hyperbaric oxygen therapy for Long Covid. Within two weeks of starting treatment he began to improve. By the end of the three month protocol he was completely symptom free.
Now living a full and active life, Matthew has written a book about his experience detailing how he overcame four years of Long Covid.
0:00 Developing Long Covid
2:11 Bateman Horne Clinic
3:34 Aviv Clinic
5:18 Life now - no PEM
5:41 Don’t give up
6:11 Cost of clinics
6:49 Matthew’s book
❇️ CONNECT WITH MATTHEW
Email: [email protected]
❇️ MENTIONED IN VIDEO
Bateman Horne Centre @batemanhornecenter batemanhornecenter.org/
Aviv Clinics @AvivClinics aviv-clinics.com/
Matthew’s book: The Long Haul amzn.to/45yiUo8
This is part of a series of videos discussing long haul Covid symptoms and treatment. People share their experience of Long Covid functional medicine, long Covid recovery using neuroplasticity and reveal new Long Covid treatments. It is an evolving area so we try to keep up with the latest Long Covid news in the hope scientists will not only discover a treatment for Covid long haulers but a treatment for chronic fatigue syndrome too.
❇️ LIVING WITH ME WEBSITE
livingwithmecfs.co.uk/
❇️ CFS RECOVERY PROGRAMS
Free downloadable guide to 6 of the most popular recovery programs
livingwithmecfs.co.uk/me-cfs-recovery-programs/
❇️ SHARE YOUR STORY
If you would like to make a video sharing what has helped you recover, or significantly improve, from ME/CFS or Long Covid email [email protected]
Living With ME CFS
We share practical tips, helpful resources and recovery stories for people living with myalgic encephalomyelitis chronic fatigue syndrome and Long Covid.
Whether you identify as a spoonie, chronically ill, disabled or as having an invisible illness you are welcome in our community. Think of us as on online chronic fatigue support group.
We share alternative treatments for chronic fatigue syndrome. This includes chronic fatigue syndrome therapies which are holistic and scientific.
People talk about the CFS symptoms they experienced and the chronic fatigue treatment they tried. They share how to cure chronic fatigue syndrome naturally. Their ME CFS recovery story will inspire you with your chronic fatigue recovery journey.
We understand healing chronic fatigue is your priority. We do our best to provide tips for everyone from those living with mild chronic fatigue to those with severe ME CFS.
And let's not forget about chronic fatigue in children. Losing your childhood to this debilitating illness is one of the cruelest things that can happen. Hopefully some of the advice we share will help facilitate their recovery from chronic fatigue syndrome.
#cfs #chronicfatigue #chronicfatiguesyndrome #mecfs #myalgicencephalomyelitis #cfsrecovery #mecfsrecovery #longcovid #postcovidsyndrome #covidlonghaulers #covidlonghauler #postviralfatigue #pacing #postexertionalmalise #pem
All Comments (21)
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41 years with this disease and I've just about tried it all. The most effective treatment by far is a clean organic whole food keto diet - sugars, very low carbs, no seed or vegetable oils, no starchy veg or tropical fruits even. Carnivore is also an option, though I hate eating meat - plus intermittent fasting and 3-5 day water fasts. Your mood can improve significantly with this diet. Regular weight training and long brisk walks, contact with nature, and stress reduction also helps, as well as berberine, NMN, krill or fish oil, resveritol, D3, K2, iodine, taurine, GlyNac, turmeric, B1, no flush niacin, zinc, and other B complex vitamins.
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🎉 good for you! Hyperbaric oxygen therapy didn't work for me, but I'm so glad it helped you!
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I had all this, I cured myself with clean diet avoiding high carbs, sugar and grains, a whole range of supplements, long walks twice per day and slow pace weight lifting (resistance training). Ive been symptom free all this year but having sort of relapse atm, it seems stress makes my immune system break down that then allows these different oppertunity infections to spread in my body combined with my own immune system attacking my body (autoimmune disorder of some sort).
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I was an ultra endurance athlete and i too have developed PEM. I have had covid multiple times and this is very interesting.
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Amazing, about 20 HBOT sessions didn't do a darn thing to help me in my journey with severe CFS/fibromyalgia.
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Thank you for the hope! I have been beyond discouraged this summer, and I needed to hear this.
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The transcript is not coming up, fyi. I will have to listen again to gather those treatments to get spellings, but glad you are better. Maybe list things for easy access? I have LC and not interested in buying another book from anyone, but appreciate those who share what worked for them. I would like to know the place and treatment that worked for you. SLC is only one state away from me. We are all desperate and not all of us have funds for the treatments. Thanks and again, glad you are better.
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It would be part of the whole story if you would disclose whether you received the covid vaccine and any boosters after you hade early onset covid. Please be transparent.
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I'm better after 3.5 years by taking (among MANY) things various Amino acids to support my Mitochondria and I'm 82 years old. I particularly like L-Carnosine.
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Most people can’t afford this
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A girl my son runs with used cryo. It helped her tremendously but still had small issues. I offered her the use of my red/infrared sauna and she seems to be doing awesome now. I think the combination of extreme cold mixed with extreme deep healing heat is a shock to the body to kind of reset itself.
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Mathew, I have one question. After you got Covid, will you ever vaccinated and if so, how many times are you vaccinated? Very encouraging hearing you got better.. I am almost 4 years and do it myself. Exact same symptoms except a little worse. I did 40 sessions of hyperbaric oxygen in a row at 15 feet for an hour and 20 minutes each. Had no help from it. I’m glad it helped you. I’ve done everybody’s program out there . Dr. Patterson’s did not help either.
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I have LC ME/CFS for almost 3 years. Unfortunately 40x Hyperbaric O2 sessions didn't make a difference for me. LDN seems to be helping somewhat.
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That’s awesome! Was your gut impacted? Do you feel POTS was due to MCAS?
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Omg so you’re ok now? Wow! I’m still struggling. Annie🇦🇺
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I had Covid 5 weeks ago and I can't seem to get over it. I'll occasionally have a good day but then I feel like total crap the next day. It's so depressing. I can barely walk a mile. My doctor has no advice.
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Can you find out if he is still having to take LDN and LDA? Thanks for posting this!
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I did hbot. It worked for me. I have put around 150 hr on my machine. I was able to buy a soft chamber for 17k. I was expensive but it was worth every penny.
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P.S. I'm also doing Brain training/rewiring.
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What about gram-negative bacteria that develop from oxygen? It may backfire on you. Keep us updated.
