A Child with Rett Syndrome (Esther the "Quiet Queen")
267,371
Published 2024-03-14
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Help Cure Rett syndrome at reverserett.org/
Esther's Family's Blog: www.facebook.com/quietqueenesther
All Comments (21)
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Anybody who would like to learn more about Rett syndrome, or contribute to finding a cure, can do so at reverserett.org/
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Not only you interview special needs people but also give their siblings time and space to say whatever they want. I can imagine that it can be tough to be a special needs kids sibling every now and then though not intentionally. I just love how everyone gets the chance to be themselves on this channel.
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This has me all emotional 😭🥰. My aunt had Rett syndrome. She passed away at 31. My grandma took such good care of her, and as I got older I helped take care of her too. They are so right. Rett syndrome girls speak with their eyes 💜. I miss my aunt every day. She taught me so much. I think it's because of her I am a good special needs mama to 2 with autism 💜
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My sister has Rett syndrome & every individual I have ever met with the disorder is the kindest, strongest, and most silently intelligent human I have ever met. 💜💜💜💜💜
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I just know if the video didn’t cut there we would have 12 minutes of the sister tryna tell one of those long winded toddler stories lol. All the kids in this video are adorable.
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The heavy breathing is normal with Rett Syndrome. Our neurologist has said it's "neither good or bad", just a trademark of R.S. So, Esther is not in distress when she breathes heavily.
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Mom of a 2 year old prader willi princess… those children are such a gift. Used to watch SBSK long before the birth of my child . Now i can really put myself in the shoes of these parents. From shock at first and disbelief … Now i feel it is a privilege to have my lovely girl who i totally adore.
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OMG ‼️ MY SISTER WAS DIAGNOSED WITH RETT SYNDROME‼️ This is the first time I have ever seen another with syndrome like my sister. She was the only one in NY at that time to be diagnosed.
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She looks like a supermodel! She is a GORGEOUS little girl!
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Hearing her breathing really makes me feel breathless. It's wild how it can affect someone psychologically
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I think the thumbnail makes her look like a model 😊❤
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I am Maddie Rae of Sunshine’s Gramma. Great job to this beautiful family. Rett Syndrome changed our lives. The joy of being Maddie’s Gramma is beyond comprehension. Sending love to our fellow Rett Families!! 💜💜💜
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I also noticed her reaction when she heard how loved she was. She's very precious and her sentience, awareness and consciousness shouldn't be undermined. She's a lovely little girl, absolutely beautiful and I believe she truly understands how loved she is.
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I've educated myself about Rett syndrome after watching this. I think Esther could be a model if she wanted to. Gorgeous child, wonderful family.
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She seems like a doll baby ❤ What a beautiful child. Lovely family as well.
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I love that she shared the Book with No Pictures with Chris. It seems like a book that is right up his alley.
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Esther has such a loving family and she is very loved
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My best friend Keira has Rett Syndrome, literally the sweetest girl I’ve ever met. She’s so kind and caring and I feel like she’s the one girl who listens to me! She’s so amazing and I love her to the moon and back ❤
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she's beautiful. In the thumbnail, she looks like a 1800s portrait. ❤
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What a cute little girl!!!
