Can you have Mild hEDS?
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Published 2023-04-13
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All Comments (8)
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I have HSD and not HEDS. My Dr said I have all of the symptoms, but because I have several autoimmune disorders it rules out and HeDS diagnosis according to the diagnostic criteria on the EDS webpage. My symptoms have gotten severe over the past 6-7 years where I have been through menopause and experienced extreme trauma in my life. I now wear a knee and foot brace. I need to purchase finger splints because I can’t press buttons on certain things anymore due to pain from hyper mobility. I appreciate you sharing your experience and advice. Maybe say a few thing about Hyper mobile spectrum disorder because I have been just as affected as someone with true EDS.
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This makes so much sense, really clarifies something I’ve been unsure of and I feel so validated.
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Very similar to autism in regards to being on a spectrum
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Thank you so much for this! I start to do somersaults in my head over this quite often, which is very frustrating.
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I have POTS, some gastrointestinal problems and migraines. I have bad scarring, TMJ and am overly flexible. However I don't have any joint dislocations.
The genetic specialist said that I probably have EDS but refused to diagnose me because there is no cure. So I am not diagnosed. -
I’m just getting started, tomorrow is my first appointment with a geneticist. My family Dr was quite surprised that I had so many red flags that I put together.
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People can have a mild case of cEDS, where as I would have a moderate case and someone else could have a severe case of cEDS.
