My Personal PIP Situation Is Changing

You can’t be a failure if all you do is share your strength with others.

Charlotte......you have not failed....the system has failed you......sending you best wishes.....stay strong❤❤💪💪

You only fail if you give up and they win. Never apologise for being authentic - if anyone understands, we do! 💛

Yes the PIP system is making us feel we are worth zero points even if we suffer everyday 7 days a week 365 days a year keep on fighting and yes i we don't want PIP but we need it for our independence the PIP system makes things worse it seems and the future well that's uncertain the way things are going the stupid voucher rubbish that Rishi come up with worrying people more and more pathetic

Dwp gave me standard on daily living only when I use a wherlchair outside home and cannot stand for more than 1 or 2 minutes (theres more to my chronic illness than that, but it's too much to go into detail). I went to tribunal just over 1 week ago and the dwp representative that also attended recommended to the judge i should be on standard on both daily living and mobility. The court went on to award me enhanced on both! Plus backdated 2 years so I'll be getting a large back-payment plus its for 5 years! If you haven't been fairly awarded by dwp but dont want to go to tribunal, i urge you to do it anyway. I was terrified but im so glad i went through with it. Remember the dwp are not medical or disability professionals, the people in the tribunal are. The dwp also purposely mark you down because they know people don't want to go to tribunal and won't take it further to a court. Yes its scary but 1000% worth it. The judge and everyone was extremely kind and understanding and I would definitely do it again if I need to.

Thank you, you didn't fail.

Charlie I’m with you 100% I really am Keep up the fabulous work!

Brain fog,i call it Immediate memory loss.it's getting worse and I'm scared because I'm on my own. 🙏🏻x

Awww send hugs. I just had my phone assessment and when I put the phone down I was left shaking crying and a headache it was horrible. Why do they teat people like this. I was honest but is it worth my mental health. I got it. But it's cruel.

I understand you want to do a consideration because you feel almost imposter syndrome from being able to walk more, but you cannot do it consistently because you deteriorate as the day goes on. You wouldn’t be able to do it in the evening every day. You also struggle to do it, even though you can in the morning so it’s not the same pace, the same as a non-disabled person would sorry I’ve only got just over halfway through the video and now I’m being you screaming NO! at the screen ❤😂 xx

God bless you ❤ We all understand pain/chronic illness, how hard it is.

Dont say youve failed, you been keeping me sane to get through my second pip tribunal since 2016....STAY STRONG (cos we need ya😎).....

Those of us who have many conditions, plod along slowly. No you would not like degenerative spinal issues. Its one of the many things i have. Along with brain issues, cancer etc etc. life is so exhausting.

I would make sure that any improvements last at least a few month before you inform pip they’re bloody evil and once they decrease your points trying to get then back if you deteriorate again is virtually impossible

i`m ten yrs indoor living never stepping past the door step now progressed into a serious illness and i am so scared of pip future .i have no family support or groups . for claims to live safety .

The walking distance thing is you have to take into account getting back, so halve it.

God bless you Charlie 🙏

I've got moderate nerve brachial plexus nerve damage in my neck shoulders and limber/pelvic region due to being knocked over 22 years ago. Focal sensory epilepsy, Bosch boonstra schaff optic atrophy syndrome (atrophy of the peripheral vision) which means I have a registration of server partial sight and I have a diagnosis high functioning ASD . I have a pa to do the cleaning, help me to check the dates on foods, planning meals, helping with shopping online and putting systems, for keeping my house clean,tidy and organised she comes for four hours weekly and an old support worker of mine is going to help me look for voluntary work that is close to home and manageable for me to carryout. She also makee sure I don't compulsively spend on things I dont need as that is part of my ASD

I am usually unconscious by late afternoon, through exhaustion and pain causing a seizure, unless I don't get up until the afternoon lol. When I transferred over from DLA I went from lowest rate mobility and zero for care to enhanced on both for PIP without having to do a MR. But my award duration was only for 2 yrs. I had a home visit and recorded it. When I was due to renew I had a phone assessment and asked for it to be recorded. I was again awarded enhanced on both after the assessment but this time it was for an 'unspecified period of time' which is usually 10 yrs from what I was told. I will be 65 when the 10 year period is up but I am not due to retire until I am 67 so I am worried that I will lose by mobility entitlement then as I have a Motability car that I would really struggle without (my husband is my carer and 'chauffeur'). Several of my conditions are degenerative and my main one is caused by faulty DNA. I understand why you are doing a change of circumstance - having hope helps to keep despair at bay. However the process causes such stress it may cause a relapse so question yourself why you are doing it. Is it because you really feel as though it will alter your award ( looking at it as an outsider I don't think it will) or is to to make you feel better in some way? What is your goal and is it achievable or are you setting yourself up for more stress? I am not trying to be negative it is just that stress is such a huge trigger for most of us and I don't want you making yourself worse for a tenuous reward. I am 59 and I have been dealing with chronic conditions all of my life and I have learnt when to savour my victories and when to sdmit that something is a goal too far or when I am 'cutting off my nose to spite my face'. The best advice I was ever given was also the hardest to hear. I was told to grieve for the life I wanted as it was never going to happen..I was never going to get back to it no matter how hard I tried and wished for it. I was told to go through the grieving process and, once out the other side, to accept my new reality and build towards achievable goals but to do so in a way that didn't include self-sabotage. Stress is a huge self-sabotage if we have a choice not to cause it. Accept what you cannot change but live the best life you can. I still research for new ways (or sometimes very old ways) to treat my conditions. I am never going to be cured but making even small improvements helps. Reducing stress as much as possible is seen as a small thing but it can have a significant impact for the better. I wish you the best no matter what you do.

Hi Charlie hope you're as well as can be. thanks for your help and support helping us all PIP medical patients we are grateful for your help and support. Please keep your chin up .say hi to Hollie the dog 🐕 and Matilda the dog 🐕 . Correcting your points are very important for yourself and Hollie the assistant dog 🐕 that helps with your day 2 day living 💙 thanks for your help and support 💙