What Schizophrenia Steals - Emotions Deeper in the Trenches - Episode 17

I was surprised that nonone talked about art. Art therapy is wonderful. Collaging is easy and requires little effort. Music therapy is also a great escape. The art and music therapy has helped my relative immensely.

i so understand what you are talking about Mimi when you mentioned the siblings all living far away for a reason. My son has one sister, two step sisters and one half brother. One half sister passed away at age 19. Out of those, his sister and one of his half sisters are the only ones that are mentally stable enough to help with their brother. But all siblings live hours away. And I understand why. But sometimes, dang it I could use the help and even more importantly, so could their brother! I'm so very thankful I have found you ladies!! I've been in the trenches now for 15 yrs and am just now finding and connecting with moms who are on the same road. Thanks to covid and zoom!

I can't thank you ladies enough! Learned about your channel through a SARDAA zoom meeting I regularly join. I'm a 54yo mom to a 36you son living with sz diagnosed at age 21. On/off meds over the years. He went into psychosis last summer due to being off meds and it has lasted until March of this year when i was able to get him to agree to the invega injection again. He's had two and has now started coming out of his psychosis. Only to refuse to receive the shot. I'm beyond exhausted. And was so happy to see glimpses of my son coming back. Now it just makes me sadder because I know he will slowly slip away again without the shot. Thanks again for sharing your stories and helping us moms out here know that we are not alone in the fight for our kids!!

thank you for this insight, i have schizo affective disorder i am 32 years of age, had my first psychosis at age 16. i often worry the trouble my family went through and youve enlightened that up more. please keep speaking about it and spread information!

I'm thankful for this podcast in the wrongness of it and the realness of it it's my heart It's My Cry also thank you

Girlfriend not a parent. My partner has been in psychosis for 5 months now. One hospitalization where he refused meds. His family is still in denial and won’t talk to him because he’s angry and says a lot of mean and uncomfortable things. They aren’t hardly speaking to him and don’t have the same views on mental health that I do. I’m going to fight for him with everything I’ve got but it’s so hard. I cry a lot. We were planning on getting married and buying a house before this and maybe even a baby. He is a brilliant network engineer. I guess I can’t be sure how much is lost until I can get him to stop refusing meds. He was 42 when this occurred, super late for this disorder and I’m pretty positive it was triggered by cannabis but has stayed even with him no longer using it. I try to think positive but at the end of the day I feel like this disease stole our lives and our future.

I'm so grateful for this podcast and I have a lot of work to do and I don't know where to begin again because I've kind of been detached from caregiving and really making responsibility

I celebrate you ladies I'm so glad I found you! It's been a long journey hasn't it. How do you find the resources in the strengthen the time to work into care for your loved one in find them care and keep on track my son was diagnosed when he was 16 with schizoaffective disorder with bipolar Mania he's been in the state hospital once it's been Baker acted over and over and over his whole life only way we could get him help if that's what you want to call it but not really or stabilized last time I called for help they sent the whole SWAT team from the City of Lakeland Florida where we live and then they smoked him out because he wouldn't respond after hours of a standoff and they proceeded when he finally came out after the gas was so strong he couldn't stand it they punched him right in the face and thought that was okay so he's lived with us his whole life he's never worked never had two relationships outside of family except for when he was very young he he was blessed a lot of ways I ain't got to do a lot of things before he was 16 and had a lot of good people in his life but then you know that desertion comes the aloneness your whole family you feel like a leper even if you had a strong Community it dwindles away because people don't know what to do or how to do it and now I find myself right there my own son I don't know how to care for him anymore he's 30 he's going to be 31 November and really he's just doped up and has a pathetic existence but I'm grateful for it and he is too but I got to learn how to live with him again and care for him again at the age of 58 on low-income and his income is Social Security disability I don't know how to do it

I don't have NAMI near me and when I checked, NAMI family to family was not available. Is it only available at certain times?

Clozaril

I also have a few videos on our journey as of late on my channel if you care to check them out.