Hemochromatosis - My Iron Overload Story (2019)

High ferritin can be also false positive, meaning it doesn't mean you really have an iron overload, but be a marker for inflammation.

Let me tell you my story. My ferritin was1700 in 12/2020 Doc and I blamed on supplement. march 2022 ferritin was 1700 ,again we blamed on red meat. in a mean time I experience gout. 3/2023 3month ago my blood work was so bad, ferritin 920 ALT and AST was like 200 Thyroid hormone was zero, worst of all HgA1c jumped to 6.9 .My oncologist started phlebotomy 250ml/month(concerning my low WBC and Low Neutrophil count) I had total 3 phlebotomy total blood removal 250 X 3 = 750ml. I was so desperate to become well, I started Carnivore diet + intermittent fasting on 3/22/23 . 9 weeks later I had my blood tests. ALT.AST normal,Thyroid normal, ferritin was 73, HgA1C=5.1 also lost 20lbs without trying too hard, lost 6 inches on my waist. (I do not have Hemochromatosis gene) The result was pure luck, it was not anyone's recommendation other than Youtube KenBerryMD. I am so happy to have found the way to regain my health.Doc said three phlebotomy did not lower my ferritin level. Something was causing inflammation and the cause was eliminated. In my case the cause of inflammation was Carbohydrate!

20 years ago my ferritin level was over 3000. It was off the scale. Still here, albeit with numerous ongoing health issues and operations. 75 yrs old now. The fifteen first years were the worst. Pain, opioids, chronic fatigue. I made it through and in my bonus life. I don't have high expectations - not able to do much, but I have someone to love, something to do and something to hope for, so I live thankfully. I am content.

I have hemochromatosis & have been ignoring it, after seeing your video im going to the doctors again, thanks for sharing this. Godspeed

Thanks! I have a very similar story, but I got a genetic test that confirmed I have the homozygous C282Y mutation that causes classic heredity hemochromatosis. In other words, the iron overload mutation came from both of my parents. In 1996, archaeologists discovered the genetic source of iron overload. Bronze Age Viking skulls found in Scotland had intact DNA with the C282Y mutation that causes iron overload.

Man Japan is one of my favorite places on Earth. I also have hemochromatosis… phlebotomy, diet, cat scans of liver (and pancreas). It’s been an over ten year battle for me. American doctors tend to not take it seriously. Thanks for the video good sir.

Thank you so much for sharing your story, have been feeling very fatigued lately even though I lead a healthy, actuve lifestyle. Blood tests showed my iron levels are way above the acceptable levels, my journey begins with more tests and bloodletting in the new year. Had no idea high iron levels were of concern until recently, great to see people trying to get the message across.

Thank you for taking the time to make this video, much appreciated.

Great video!! Thanks for doing this. Yes lets keep raising awareness!

I’m iron deficient! I thought I could share why my iron levels are so low to help you guys. I’ve been taking high dose turmeric tablets for inflammation and that has severely stopped me absorbing iron. Research it. Good luck!

Thank you for this video and sharing your experience. I guarantee you are saving lives. I wish you all the best in health and happiness.

Thank you for your video, i just discovered i have it, my iron is high for almost 10 years, my Dr never told me about it until I asked to be tested, hope u feel better since is almost 3 years u made this video!🙏

This is an amazing testimony! Thank you

Rich was so blessed to have met a good doctor to guide him, answer his questions and calm him down with such alarming news of his health. His story was well reported, easy to follow and informative. 👍👍👍💚

Thank you so much! Very helpful information and i do hope you’re blessed with good health! Love!

Thank you Rich for sharing your story. It has helped me with understanding my lectures on Iron overload and Hemochromatosis. I hope to help persons with this condition in the future!

Thank you for sharing your experience, very helpful information. Wish you all the best.

Thank you for sharing your story. I was recently diagnosed with Hereditary Hemochromatosis and it has been an interesting process going through treatment.

Thanks, Rich! This video is very informative. Yesterday (3-4-24), I had the result of my hemachromatosis test at 794 from the previous 791 two months ago. I wish you have have an updated video on the same topic. Thanks, and God Bless!

Thank you for sharing this information with us. ♥️✋ Much love and wishes for good health